I have made it a point to share from the heart on this blog and I have done just that. Today's blog post is going to be the hardest one yet to write. The holidays are difficult for many who have lost loved one's during the year. I lost my father back in 2002 and yes that first Thanksgiving and Christmas were difficult but we all managed to get through it.
This year is already turning out to be harder then 2002 and we haven't even gotten to Christmas yet. My DD#2 has been living in various group homes and phosp's for 3 months now and it seems to get harder and harder as more time passes. I know that she is getting the help she needs and I believe that one day she will be allowed to come back home to us, but we just have to wait for that day to come.
Thanksgiving was difficult where we cooked it all ahead of time and then packaged it all up. Thanksgiving morning, we loaded up the car and brought it all for our 1 1/2 hour drive to be able to spend 1 hour with my DD#2 so we could celebrate together. The time we had with her was great and it was good to see all 3 kids together for the first time in almost a month. See my DD#3 isn't old enough to visit her sister except on holidays, there is an age restriction.
I am NOT looking forward to Christmas this year. I think this is the first time I can ever remembering feeling this way. Yes I have had Christmas's without my kids, when they went to celebrate it with their father, but this is different. They needed their time with their father as well as time with me and that was ok. This year I don't even know what to get my DD#2, so many things are restricted, including pencils!
Everyday there is more and more Christmas movies featuring families getting together, all happy and joyous. Each day is harder and harder for me to face it with a smile on my face. I just wrote a post on a support group I belong to and broke down in tears, and you know how much I hate tears! I am loosing my composure daily now thinking about the up coming holiday. Thinking about how we are going to be able to celebrate with all the rules and regulations. Can I even wrap gifts to her so she can open them? Did I take all the staples, string, sharps out of presents so she can have them with her?
I am to the point now that I dread waking up the next morning. What else is going to happen with her? Will we even be able to see her on Christmas if she is having a bad day? I am having a hard time even putting that smile on my face everyday and acting like all is good. Yes I give this all up to God to handle and use for His glory but the tears are still here, ready to flow, daily. The fears of this being our life from here on out and not to ever get my DD#2 back the way she was before BP took over her life. Will we ever be a true family again? Only God knows that answer but I sure wish He would clue me in on it cause I am scared, worried and hopeless not knowing what will happen next.
The rambling's of a single mother raising special needs children. A birds eye view into mental illness in loved ones and how it effects those around them. "I can do all thing's through Christ who strengthens me." Phillipians 4:13
Saturday, November 24, 2012
Monday, November 5, 2012
Involved Agencies
When you are dealing with a child with MI, you also have to deal with different agencies in order to get the services your child may need. This is an inevitable thing that will happen whether you want them involved or not, some times you have no choice in the matter. Dealing with different agencies can be quit stressful as well as confusing at times. Some can come in and just over see things to make sure your child is getting their needs met and you barely notice they are even there most of the time.
I have had a variety of agencies involved in our lives in the last 10 years of dealing with MI. Some of the agencies we have had dealings with are DMH (Department Of Mental Health), DCF (Department of Children and Families), DYS (Department of Youth Services), CAP (I cant for the life of me remember what that stands for), ICC (Intensive Case Coordinators), YV (Youth Villages) .......and the list could go on and on into medical agencies as well as legal ones.
For those of us that are seeking help for our children, getting an agency involved can somewhat be tricky. When I first embarked on this road of moderate to sever MI children, I got more then one door shut in my face by agencies. I was told many times that I did not qualify for their agency because I did not have other agencies involved in our lives. When prompted as to how to get them involved in our lives, I was told that the children have to be abused or neglected to get workers.
I was dumbfounded when I was told I didn't qualify for help because I did NOT abuse or neglect the needs of my children. Talk about twisting parents ideas of our mental health system. I, a loving and nurturing parent, could NOT get help because I took care of them? In all honesty after getting that reply time after time of calling all the agencies I could think of, I seriously thought...........ok, how much can I neglect/abuse my kids to get help? Thank God those thoughts were quickly passing and I never did such a thing, but what is this society saying to parents like me? Yes I did finally get some help with my children but I had to fight with the "state" to be allowed to voluntarily get help from an agency that most parents cringe at the thought of them being involved in their family.
Now years later, I am once again faced with having this same agency involved in our lives again but under different circumstances. I am a little ambivalent to go forward with this because it involves more then last time. Granted I know that my DD#2 needs to be involved with this agency in order to move forward toward some sort of stability but that does not take away my anxiety this time. I have to hold my breathe and hold my head up and know that I am making the right decisions for her. I long for her to be stable again and to be able to return home and have the ability to be safe at home. This has been the longest last 7 weeks of my life so far. It is not over and I am sure there is a lot more to come before she becomes an adult.
I have had a variety of agencies involved in our lives in the last 10 years of dealing with MI. Some of the agencies we have had dealings with are DMH (Department Of Mental Health), DCF (Department of Children and Families), DYS (Department of Youth Services), CAP (I cant for the life of me remember what that stands for), ICC (Intensive Case Coordinators), YV (Youth Villages) .......and the list could go on and on into medical agencies as well as legal ones.
For those of us that are seeking help for our children, getting an agency involved can somewhat be tricky. When I first embarked on this road of moderate to sever MI children, I got more then one door shut in my face by agencies. I was told many times that I did not qualify for their agency because I did not have other agencies involved in our lives. When prompted as to how to get them involved in our lives, I was told that the children have to be abused or neglected to get workers.
I was dumbfounded when I was told I didn't qualify for help because I did NOT abuse or neglect the needs of my children. Talk about twisting parents ideas of our mental health system. I, a loving and nurturing parent, could NOT get help because I took care of them? In all honesty after getting that reply time after time of calling all the agencies I could think of, I seriously thought...........ok, how much can I neglect/abuse my kids to get help? Thank God those thoughts were quickly passing and I never did such a thing, but what is this society saying to parents like me? Yes I did finally get some help with my children but I had to fight with the "state" to be allowed to voluntarily get help from an agency that most parents cringe at the thought of them being involved in their family.
Now years later, I am once again faced with having this same agency involved in our lives again but under different circumstances. I am a little ambivalent to go forward with this because it involves more then last time. Granted I know that my DD#2 needs to be involved with this agency in order to move forward toward some sort of stability but that does not take away my anxiety this time. I have to hold my breathe and hold my head up and know that I am making the right decisions for her. I long for her to be stable again and to be able to return home and have the ability to be safe at home. This has been the longest last 7 weeks of my life so far. It is not over and I am sure there is a lot more to come before she becomes an adult.
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